In Boyertown, Pennsylvania, a story of resilience, love, and community support unfolds through the lives of Stephanie and her 13-year-old son, Micah.
Micah has Down syndrome, autism spectrum disorder, ADHD, obstructive sleep apnea, and other medical complexities. He is nonverbal, requires constant care, and depends on his mother for every aspect of daily life. Despite the challenges, Stephanie knows him to be a precious, beautiful blessing. The past year has been especially hard for Stephanie. In addition to her responsibilities as Micah’s sole caregiver, she has been navigating life without her husband, who passed away last year from pancreatic cancer. “He was Micah’s best friend,” she said. “Losing him was devastating for both of us. I have had to take on everything alone since then.”
As Micah’s needs require 24/7 attention, his mother is unable to work full-time. She works while he is at school, but with a limited income, it can be difficult to keep up with expenses. When Stephanie’s vehicle broke down and the repair bill was over $5,500, this created a difficult situation since Stephanie relies on her vehicle to get to work, to take Micah to his doctor appointments, and to take him to his upcoming surgery in January. Her vehicle is not just a mode of transportation, it is a lifeline.
This is when Jess’s Sunshine Fund of Berks County Community Foundation stepped in to cover the expense. Jess’s Sunshine Fund was established on February 20, 2001, to honor Jess Schaeffer, who was the manager of the Boyertown boys’ basketball team. Jess used a wheelchair because of a rare type of cancer called Langerhans cell histiocytosis.
The fund helps families in Berks County who have children or dependent adults with special needs caused by long-term serious illnesses or injuries. It focuses on helping families in the Boyertown Area School District, though all Berks County residents are eligible. Since it started, the fund has provided over $73,000 in grants to families who need financial support during tough times.
“I don’t know what I would have done without this grant,” Stephanie says. “Micah has so many medical appointments and procedures that require transportation. Missing them is not an option, but I did not have the resources to fix the car.”
The money from the grant also allowed her to buy a video baby monitor. Micah has obstructive sleep apnea and must wear a CPAP mask at night, requiring his mother to check on him often. With the monitor, she can ensure he is safe without getting up multiple times during the night, giving her some much-needed rest.
Through tears of gratitude, Stephanie shares how much the grant meant to her family, “This has been such a huge blessing for us. I cannot thank everyone involved enough. Micah and I have been through so much, but knowing there are people who care and want to help gives me hope.
To learn more about Jess’s Sunshine Fund or apply for assistance, click here.
